News

Eosinophils & APFED in the News….

Updated Consensus guidelines on the Diagnosis and Management of Eosinophilic Esophagitis have just been published in JACI (open access)

2011 Abbey S. Meyers Award presented to APFED by NORD for outstanding leadership in the areas of education and advocacy
http://www.emoryhealthsciblog.com/?p=4704
http://www.nnpdf.org/NORDToHonorRareDiseaseInnovators.htm
http://markets.pe.com/pe/news/read?GUID=18171774

James Delano educates on life with EoE
http://blog.al.com/spotnews/2011/06/post_652.html
http://www.parentdish.com/2011/06/02/boy-allergeric-to-all-food/

Oral budesonide Update from DDW
A medical update presented at Digestive Disease Week about the status of clinical trials for a proprietary oral budesonide solution from Meritage Pharma. This article discusses the clinical trial, EOS disorders and APFED.
Click here for more details.

NEAW 2011
The Leominster Champion (a local newspaper from Leominster, MA), featured this Letter to the Editor raising awareness of Eosinophilic Esophagitis, APFED and the National Eosinophilic Awareness Week. Our thanks to Jodie Bell and her son Michael (EoE, age 13) for helping get the word out.
Click here for more details.

Life with EGID
The Herkimer Telegram (local community website of Herkimer, NY) featured this story asking readers to try to imagine a life without food, as some children with EGID unfortunately all too often have to do. Thanks to Kylene and Philip Jordan and their son Cooper (EGID, age 3) for helping share with others about EGID and about National Eosinophilic Awareness Week.
Click here for more details.

APFED Founder Beth Mays, subject of book chapter in The Web Savvy Patient, interviewed on “the View”
The Web Savvy Patient, a book about using the Internet to help educate and empower patients, by Andrew Schorr and Mary Adam Thomas, links to APFED on their Resources page.
Click here for more details. (Book called The Web Savvy Patient that mentions APFED)

Racing for A Cause’s Ricky Springer Features on the cover of Singularity magazine
This issue of Singularity features a great interview with Ricky Springer (Eosinophilic Colitis, age 9). Ricky is a competitive go-kart racer who started Racing for a Cause (http://www.racingforacause.com) to help educate people about EOS and APFED. Ricky's goal is that "No one should suffer and live in pain like I did". One lap at a time, he's helping make that a reality.
Interview with Ricky Springer regarding Racing for a Cause