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APFED Media Packet

Eosinophils & APFED in the News….

 

Updated Consensus guidelines on the Diagnosis and Management of Eosinophilic Esophagitis have just been published in JACI (open access)

2012 Anderson Cooper – “The Boy Who Cannot Eat”

2011 Abbey S. Meyers Award presented to APFED by NORD for outstanding leadership in the areas of education and advocacy
http://www.emoryhealthsciblog.com/?p=4704
http://www.nnpdf.org/NORDToHonorRareDiseaseInnovators.htm
http://markets.pe.com/pe/news/read?GUID=18171774

APFED Founder Beth Mays, subject of book chapter in The Web Savvy Patient, interviewed on “the View”
The Web Savvy Patient, a book about using the Internet to help educate and empower patients, by Andrew Schorr and Mary Adam Thomas, links to APFED on their Resources page.
Click here for more details. (Book called The Web Savvy Patient that mentions APFED)

Racing for A Cause’s Ricky Springer Features on the cover of Singularity magazine
This issue of Singularity features a great interview with Ricky Springer (Eosinophilic Colitis, age 9). Ricky is a competitive go-kart racer who started Racing for a Cause (http://www.racingforacause.com) to help educate people about EOS and APFED. Ricky's goal is that "No one should suffer and live in pain like I did". One lap at a time, he's helping make that a reality.
Interview with Ricky Springer regarding Racing for a Cause

Char Magnifico of The Traveling Twosome, For APFED
Char Magnifico, star of The Traveling Twosome, announces to her fans that she is living with eosinophilic esophagitis.  Char and her husband Louis plan on using their show to help create awareness of these diseases. 
Char Magnifico's announcement

APFED/Eosinophil Associated Disorders

Rare condition means young boy can only eat 6 foods
5-4-2012  Birmingham, AL

The Long Haul:  Life With an Eosinophilic Disorder and a Race to Raise Awareness
5-1-2012  Oklahoma City, OK

McDonough boy uses love of go-karts to bring awareness
4-18-2012   McDonough, GA

Bands will "Rock the Cure" this weekend
4-10-2012  Rockingham, NC

Rare food allergy cases up, affects Tucson boy
4-4-2012  Tuscos, AZ

Update boy known as G3 visits DC to lobby Congress
3-29-2012  Greenville, SC

Cape Coral teen suffers from rare disorder
3-15-2012  Cape Coral, FL

Upstate boy can only eat 4 foods
2-29-2012  Greenville, SC

Is something in your food making you sick?
1-30-2012, McDonough, GA

Boy can only eat seven foods
1-9-2012,  Greenville, SC

Baugh uses games to keep swinging
1-11-2012, San Antonio, Texas

Utah family pressures insurers to cover formula
1-5-2012,  Salt Lake City, Utah

Afraid to Eat
1-5-2012,  Nanaimo, Vancouver Island, British Columbia, Canada

2011

Some cases of acid reflux may be another condition
12-18-2011, Deptford, NJ

Rare disorder leaves Oklahoma woman unable to swallow food
12-18-2011,  Choctaw, OK

The Strength to grow:  Area youth faced with rare eating disease perseveres
12-3-2011,  Kenai, AK

11-18-2011,  Colorado Springs, CO
 
11-11-2011,  Leomister, MA
11-6-2011,  Broomfield, CO
Bravery of the Girl Who is Fed Through a Stomach Tube but Takes Lunchbox to School to "Fit In With Friends"
9-5-2011,   UK
7-29-2011, Smithfield, VA  USA
 
5-15-2011, Philadelphia, Pa

Kin of a stricken Staten Island buisness owner Anthony Gerardi mount fundraiser
2-4-2011, Staten Island, NY

Racing for a Cause

Press Releases

Events / Fundraising