NEAW 2017 Partners

National Eosinophil Awareness Week 2017 is a special opportunity for businesses and organizations to show their support for those living with eosinophil-associated diseases. We’re grateful to the following Partners that have pledged to help APFED increase awareness and education during the week of May 14-20.


Akron Children’s Hospital
Website: https://www.akronchildrens.org/
Organization’s Role: Clinic/Hospital/Institution
How will your organization recognize National Eosinophil Awareness Week? Promotion through a weekly newsletter to all employees. Advertising the week through television screens throughout the hospital and elevator postings.
About how many people do you estimate you will reach? 5,000 employees


Alabama Eos Support Group
Organization’s Role: Patient Advocacy Group


ausEE Inc.
Website: www.ausee.org
Organization’s Role: Patient Advocacy Group
How will your organization recognize National Eosinophil Awareness Week? We have mentioned it in our newsletter, and we will also mention it during the week on all our social media pages.


Cincinnati Center for Eosinophilic Disorders
Website: https://www.cincinnatichildrens.org/service/c/eosinophilic-disorders
Organization’s Role: Patient Advocacy Group


Center to Advance Palliative Care
Website:  http://www.GetPalliativeCare.org
Organization’s Role: Non-profit that provides a patient/family website resource
How will your organization recognize National Eosinophil Awareness Week? Communicating about EADs and APFED during the National Eosinophil Awareness Week, as well as promoting the 2017 Eos Connections conference and Dr. Bhullar’s participation.


Families Affected By Eosinophilic Disorders
Website: http://www.fabed.co.uk
Organization’s Role: Patient Advocacy Group
How will your organization recognize National Eosinophil Awareness Week? Education of medical professionals and the general public in the UK. Members are holding awareness events around the country and giving talks in school to educate their teachers and fellow pupils. Use of social media to promote awareness.
About how many people do you estimate you will reach? 2,000


Greenville/ Spartanburgh Eos Support Group
Organization’s Role: Patient Advocacy Group


Kids With Food Allergies
Website: www.kidswithfoodallergies.org
Organization’s Role: Patient Advocacy Group
How will your organization recognize National Eosinophil Awareness Week? Sharing social media messages and blogs about EoS on our own pages as well as liking /sharing APFED’s content


International Foundation for Functional Gastrointestinal Disorders (IFFGD)
Website: http://www.iffgd.org
Organization’s Role: Patient Advocacy Group
How will your organization recognize National Eosinophil Awareness Week? IFFGD pledges to help raise awareness about eosinophil-mediated disorders, especially those affecting gastrointestinal function, during the 2017 National Eosinophil Awareness Week. We will share information regarding these conditions using social media to reach our audience, which primarily consists of people interested in digestive conditions.
About how many people do you estimate you will reach? Between 2,000 and 10,000 people


National Eosinophilia Myalgia Syndrome Network
Website: http://www.nemsn.org
Organization’s Role: Patient Advocacy Group


New York Metro Eos Support Group
Organization’s Role: Other
How will your organization recognize National Eosinophil Awareness Week? Leading up to National Eosinophil Awareness Week, we are distributing upcoming or in-progress studies and current research to all of our members and all patients at the Mt. Sinai Hospital – Jaffe Food Allergy Institute – Eosinophilic Disorders Program. We will also be hosting a Eosinophilic Support Group during the week on May 18th at Mt. Sinai, moderated by Amy Jo Frischling and Dr. Mirna Chehade, who will be available to answer questions of attendees.
About how many people do you estimate you will reach? 100+


ufan

Utah Food Allergy Network, Division of Eosinophilic Support
Website:  http://www.utahfoodallergy.org/
Organization’s Role: Patient Advocacy Group
How will your organization recognize National Eosinophil Awareness Week?  UFAN just finished its Annual Patient Education Conference with topics and speakers directly related to eosinophilic disorders, including research updates, physicians from the Food allergy Eosinophilic Clinic (FED clinic), dealing with anxiety, feeding issues, restricted diets, etc. Utah House Bill 400 regarding formula coverage recently passed, and we are working to spread the word so eligible families can access coverage. We have partnered with a local physician, working on EGID research and a social/emotional impact of EIGDs questionnaire. We are in the planning stages of a fundraiser in the fall. During NEAW, we plan on holding an advocacy/support meeting with guest speakers. We also plan to contact our local news stations/newspapers to help spread the word about eosinophilic disorders and highlight some amazing families living with EGIDs.


Special thanks to our education partners for supporting APFED’s NEAW celebration this year!

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