NEAW Toolkit for Individual Supporters

Welcome to the celebration of National Eosinophil Awareness Week (May 14-20, 2017)! We invite individuals, organizations, health care professionals, schools and other supporters to help APFED spread awareness in your communities, healthcare offices, schools and businesses. This toolkit will help you explain what eosinophil-associated diseases (EADs) are and includes tools to help you raise the level of education and awareness.

Your Kit Includes:

APFED’s Mission • What Is NEAW Week? • How to Say Eosinophil • What Is an Eosinophil-Associated Disease? • Fact Sheets • Support & Resources • Social Media • Logos • How to Get Involved • Kids and Teen Corner • Press Release for News and Media


APFED’s Mission

To embrace, support, and improve the lives of patients and families affected by eosinophil-associated diseases through education, awareness, research, support, and advocacy.


What Is NEAW Week?

National Eosinophil Awareness Week (NEAW) was established in May of 2007. Passed by the House Bill 296 in the U.S. House of Representatives, the third week in May will always be home to NEAW. The week is dedicated to raising awareness and educating both the medical community and the public about eosinophil-associated diseases, which are on the rise worldwide, and what patients endure living with these conditions.


How to Say Eosinophilic:

E-O-sin-O-fill-ik


What Is an Eosinophil-Associated Disease?

Eosinophil-associated diseases (EADs) occur when eosinophils, a type of white blood cell, cause damage to the body. Eosinophils play a role in the immune system, helping to fight off certain types of infections and parasites. These cells respond to triggers (e.g., food and airborne allergens) by releasing toxins into the affected area.

Eosinophilic gastrointestinal disorders (EGIDs) are distinct diseases affecting the gastrointestinal tract, which render the patient unable to tolerate food proteins. Treatments for these disorders include restricted diets or total food elimination, requiring patients to live off an elemental formula (taken either orally or via a feeding tube), and/or steroid treatments.

Eosinophilic disorders are named for the areas affected by abnormal behavior of these blood cells:

  •    Eosinophilic Cystitis: Bladder
  •    Eosinophilic Fasciitis: Connective tissue

      Eosinophilic Gastrointestinal Disorders:

  • Eosinophilic Colitis (EC): Large intestine
  • Eosinophilic Esophagitis (EoE): Esophagus
  • Eosinophilic Gastritis (EG): Stomach
  • Eosinophilic Gastroenteritis (EGE): Stomach and small intestines
  •    Eosinophilic Granulomatosis with Polyangiitis (aka Churg-Strauss Syndrome): Blood vessels, various organ systems
  •    Eosinophilic Pneumonia: Lungs
  •    Hypereosinophilic Syndrome: Blood and any organs

Fact Sheets:

Share and teach others with APFED’s  Eosinophil-Associated Diseases  fact sheet

Learn how to say eosinophilic and what it means with the Can You Say “Eosinophilic?” fact sheet


Videos and Webinars:

Learn about APFED and eosinophil-associated diseases in this  Intro Video

View APFED’s  Informational Videos and Webinars for a more in-depth look


Support for Patients and Caregivers:

Join the online support community EOS Connections to learn what others are doing and experiencing (monitored by both Inspired and APFED).

Read Patient Stories  for perspectives from patients and family members living with EADs


Social Media:

Visit us on our various social media channels for the latest NEAW info and activities:

National Eosinophil Awareness Week Facebook Page

 APFED Channels:

Facebook

Twitter

YouTube

Pinterest


Digital Images:

Use our digital images to post on your social media sites: http://apfed.org/download-digital-images-for-neaw-2017/


How to Get Involved:

Take action each day of NEAW 2017 with Your Day-by-Day Guide of Suggested Activities

Learn more fun and easy Ways to Get Involved during NEAW 2017

Participate in APFED’s #READ4EAD Campaign, a fun and action-oriented social media awareness campaign


Kids and Teens Corner:

Esophagus Kids Video 

Elimination Diet Game

Gus Quiz Show

Resources for Teens


Press Release for News and Media:

Download and share this NEAW Press Release with your local media outlets to help get the word out about eosinophil-associated diseases


Follow Us All Week and Use Hashtag #NEAW2017.

To Stay Up to Date on Local/ Online Events, click here.