Hypereosinophilic Syndromes Patient Conference

APFED’s Hypereosinophilic Syndromes Patient Education and Drug Development Conference was held March 23, 2018 in Rockville, MD. If offered a unique opportunity to learn about treatments and research advances for hypereosinophilic syndromes (HES), and to share perspectives with the FDA and other key stakeholders about the impact of HES on patients and families, as well as how patients view current treatment approaches. Dynamic sessions and question and answer opportunities allowed all those who participated to learn and share knowledge.

 

Conference Materials

  •   Conference agenda (PDF)
  •   Speaker bios (PDF)
  •   HES patient guide (PDF)
  •   View the webcast – Please note: This recording does not include Dr. Klion’s presentation. We will update the recording to include this presentation as soon as the research that was discussed is published and we are able to show the material. Please also note that polling questions and call-in instructions that are included in the webcast were only operational during the live event are no longer accessible.

 

Your Input is Still Needed

Comments from the discussion at the conference will be summarized and submitted to the FDA and other stakeholders in an effort to outline the unmet needs in hypereosinophilic syndromes. If you are a patient or caregiver who did not join us onsite or for our webcast on March 23,  we still want to hear from you!

You may share your perspective on the discussion topics using this form. We may choose passages from your responses to incorporate anonymously into post-meeting reports.

 

Research Participants Needed

Virtual Webcast FAQs

How long will the webcast of the conference be available?
Whom should I contact if I am having technical trouble with the webcast?

Below are a few suggestions to help optimize your virtual attendance

Internet: A wired internet connection is recommended
Browser: We suggest using Google Chrome if possible
Sound: Any device with a speaker will be sufficient
Flash: Version 10.3 and above

For additional technical requirements to view the webcast, please see https://helpx.adobe.com/adobe-connect/tech-specs.html.

Questions? Email conference@apfed.org.