Community Partner Events

 


Rare Disease Day
February 28, 2020
8:30 a.m. to 4:30 p.m.
Natcher Conference Center
Building 45
National Institutes of Health Campus
Bethesda, MD
Learn more and register (in person or webcast)


Capitol Hill Advocacy Day – Medical Foods
May 14-16
Cleveland, OH

2020 Living Rare, Living Stronger NORD Patient and Family Forum.
This event is designed for rare disease patients, families and caregivers as well as physicians, medical students, health professionals and advocates. For more information or to register, visit this registration page from The National Organization for Rare Disorders.


4th Annual Adam Rantz Memorial Golf Outing
Friday, May 15
Macoby Run Golf Course in Green Lane, PA
Registration opens at 12:00 PM, Shot-Gun Start at 1:00 PM
Registration details coming soon!


10th Anniversary Hope on the Horizon Walk for Eos
Saturday, May 16
9:00 AM at Mariner Point Park in Joppa, Maryland
Registration details coming soon!


Capitol Hill Advocacy Day – Medical Foods
May 18-19, 2020
Washington, DC
Patients, families, and providers are invited to join APFED and other advocates from the Patients and Providers for Medical Nutrition Equity in Washington D.C. as we advocate for federal legislation that provide insurance coverage of medical foods. We need as many congressional districts represented as possible! Registration will open in 2020. In the interim, if you plan to attend, please let us know so that we can ensure you are notified when registration opens.


National Eosinophil Awareness Week
May 17-23, 2020


Eos Connection: APFED’s Annual Patient Education Conference on Eosinophil-associated Diseases
July 9-11, 2020
San Diego, CA
Registration to open Spring 2020