2019 Eos Connection Patient Education Conference



The Bethesdan Hotel* 
8120 Wisconsin Ave, Bethesda, MD 20814

*The venue is currently known as DoubleTree by Hilton. Hilton will rebrand this hotel in Spring 2019 under the new name, “The Bethesdan”

Conference sessions and activities will take place at The Bethesdan Hotel, unless otherwise noted.

Discounted room rates at the Bethesdan will be available to APFED conference attendees. When the room block is open, we will post to this page a special link for online reservations and a code to use for those making reservations via telephone.

Conference Registration will open in early Spring 2019

 



What Did Attendees Have to Say About the 2018 APFED Conference?

“The conference was incredibly helpful in clarifying and increasing my understanding of my son’s disease, giving me a roadmap of the current research, treatments, and the biology regarding eosinophil diseases.”

“It was good to see the positive steps forward in understanding and treating disease more specifically towards each patient. To meet families who have dealt with the disease for years, and those who were just diagnosed, and finding we are all dealing with the same social issues, family issues, and medical questions was comforting. It made us feel less alone.”

“The opportunity to spend time talking to the doctors treating and researching the disease, plus other people having similar experiences as myself is worth the trip, every time.”

“This was my first time attending. I was so impressed with the entire program. The information was pertinent, it was user friendly, the coordinators were helpful and organized. Everyone was friendly and answered any questions we had.”

“Even though my son was diagnosed three years ago, there is still so much to learn about EoE. I feel I came away with new and more knowledge to further my collaboration with his doctors.”

“I have been searching for the words that would express the profound sense of community I felt this week. I still don’t have them. I will simply say, thank you. Thank you for the forum, transparency, willingness, stranger love and care. To know you are not alone and to see you are not alone are two different things. I have NEVER seen [my son] so happy to be around others like him.”

“In all ways, my son and I benefit. There is nothing like being among people who ‘get it!'”

“Very informative! Thank you!”

“If I learned nothing from coming to an APFED conference – which I did, by the way! – it is worth it to see my child be able to relate to like-minded peers who are going through the same things.”

“Very well-organized and thoughtful event. I would love to come every year!”

“So much wonderful information to take home to continue our treatments for our son and improve our advocacy for him.”

“Such a wonderful event to bring together the EGIDs community for education, support, and fun!”

“A great place to learn what is happening in research and treatment advances for patients.”

“I will be a better advocate for us now!”


2018 Conference Materials

Our 2018 conference took place in July 2018 in Denver, CO. 

Thanks to our Education Partners for making the 2018 Eos Connection Conference possible:

Presenting Partner

Platinum & Travel Grant Partners

   


Gold Partners

Silver Partner

Allakos

Mead Johnson Nutrition

Supporting Sponsor
Rare Patient Voice


About Our 2017 Conference

APFED’s 2017 Eos Connection was held July 8-9, 2017 in Greenville, SC.

Download the 2017 Conference Program

2017 Conference Video 1

2017 Conference Video 2

2017 Conference Video 3

2017 Conference Video 4