Research Surveys, Interviews, and Perspectives

This page includes opportunities for research surveys, interviews, focus groups, and storytelling.


 

Seeking People with Eosinophilic Esophagitis (EoE) to Share their Story
Posted March 2023

Bristol Myers Squibb™ (BMS) invites members of our community to share their story through their Share to Inspire platform. This platform gives people an opportunity to share their experiences with health conditions or with BMS’s treatment medicines and designed for patients and caregivers to pass on what they’ve learned to others.

Learn more

Seeking Eosinophilic Esophagitis (EoE) Patients Interested in Dietary Therapy

Posted January 2023

Have you been diagnosed with Eosinophilic Esophagitis (EoE)? Interested in dietary therapy for your EoE and don’t know where to start? Worried that an elimination diet will be difficult to follow?

We developed a dietitian-led video series to help you learn about the cause of EoE, how certain foods are involved, and how to work through the stages of the 4-food elimination diet while maintaining a nutritious and enjoyable diet. This course normally costs $100, but will be FREE to you and we hope you can give us feedback as part of this study.

Find out more or join this study. View the study flyer.

 


Share Your Opinion and Benefit APFED through Rare Patient Voice

Patients (14 and older) and caregivers (family, friends) of any disability, disorder, syndrome, disease or condition are provided an opportunity to voice opinions through surveys and interviews to improve medical products and services. Join the Rare Patient Voice community online and earn a $5 Dunkin Donuts, Starbucks or CVS gift card.  APFED will also receive $5 for each qualified signup, which will benefit our HOPE on the Horizon Research Program. Your information is confidential, and your email/name is never shared. You may be invited to participate in surveys from time to time, where you will earn cash. Learn more and join here:  American Partnership for Eosinophilic Disorders (APFED)