Online Support Communities
APFED’s online support community, “EOS Connections“, gives patients, caregivers, and family members, whose daily lives are affected by an eosinophil associated disorder, a chance connect with others for support and to share information. EOS Connections is monitored by Inspire and APFED.
There are also a number of Facebook groups for people with eosinophilic disorders. You may use the platform’s search function to find groups to engage with.
Local Support
APFED does not have affiliated support groups, but as a courtesy, a list of volunteer-led support groups are below. Please verify meeting information, location and times with the group leader prior to attending each meeting because all information is subject to change. This list does not imply endorsement or affiliation of any support group with APFED. This list is intended only for groups that organize meetings and events for members to participate in.
| State/City | Support Group | Meeting Schedule & Location | Contact |
|---|---|---|---|
| Alaska | Alaska EGID | Due to the geographical diversity of Alaska, we try to meet a couple times of year mid state, around Anchorage or Wasilla area. Most group contact is through Facebook. | Gail Balzer gailbalzer@rocketmail.com +1 (907) 394-3883 |
| Arizona, Phoenix | Arizona EOS Support Group | When: Last Thursday, every other month Where: Banner Desert Medical Center | Tara Ross az.eos@hotmail.com |
| Arizona, Phoenix | Phoenix Children’s | When: Quarterly Where: Phoenix Children’s Hospital Cohen Conference Room Please email for more info or to join support group | eoe@phoenixchildrens.com |
| Arkansas | Arkansas Eosinophilic Support Group | Please e-mail or call for more information | Kirby Nassey Smith kirbymassey4@yahoo.com +1 (890) 926-9563 |
| Colorado, Denver | EOS Colorado | Please e-mail or call for additional directions and information | Chanda Organ denver.eos@gmail.com |
| Georgia, Atlanta | Atlanta/N. Georgia Eosinophilic Disorders Support Group | When: Quarterly meetings. Please e-mail or call for additional information | Dani Startt danistartt@yahoo.com +1 (678) 520-3703 |
| Montana | Montana Eosinophilic Support Group | Please call or e-mail for additional information and directions | Becky Sullivan beckysullivan406@gmail.com |
| Nevada, Las Vegas | EOS Las Vegas | Please e-mail for for more information | Amber Hoyt agtamber@hotmail.com |
| New York, New York City | New York Metro EOS Support Group | When: Bi-monthly meetings Where: Mount Sinai Hospital. Please call or e-mail for additional information and directions | Amy Jo Frischling NewYorkMetroEosSupport@gmail.com |
| North Carolina, Charlotte | Charlotte Supports EOS | Raquel Durban RDURBAN@ASTHMANC.COM +1 (704) 341-9600 ext 1302 |
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| North Carolina, Raleigh | Triangle Eosinophilic Group (TAG) | When: Every 3rd Sunday from 3 PM to 5 PM Locations: vary. Please call or e-mail for additional information and directions | Susan Ramquist susanramquist@gmail.com |
| Ohio, Akron/Cleveland | Akron/Cleveland area Eosinophilic support group | Please e-mail for additional information and directions | Stacy Bergdorf steg1994@yahoo.com +1 (330) 687-3603 |
| Ohio, Cincinnati | Cincinnati Center for Eosinophilic Disorders/Cincinnati Eosinophilic Family Coalition | When: every other month from 6:30 PM to 8 PM Where: at the hospital; refer to website for details regarding specific room information ; childcare is provided free of charge | www.eoscoalition.org contact@eoscoalition.org +1 (513) 600-8900 |
| Utah | Eosinophilic Parents of Utah | Please email for additional information. | Melissa Sauter eos4utah@gmail.com |
| South Carolina | Charleston EOS Support Group | This group schedules activities through its Facebook page. | Stephanie Sams stephsams@comcast.net +1 (843) 813-6735 |
| South Carolina | Greenville Spartanburg Eos Support Group | This group schedules activities through its Facebook page. | Victoria DeLano eosalabama@gmail.com |
| Texas, Austin | Austin Families with Food Allergies | AFFA (Austin Family with Food Allergies) group meets quarterly with events in between. All information, events, etc can be found on the AFFA Facebook page. | amy@texaseos.org |
| Texas, Dallas Ft. Worth | Eosinophilic Family Coalition DFW Chapter | Monthly meetings. Please e-mail for additional information and directions | Amy Zicarelli, Leader amy@texaseos.org +1 (214) 289-3022 eoscoalition.org |
| Virginia (Richmond, Fredericksburg, Tidewater, Charlottesville) | Central Virginia EOS Support Group | Please e-mail for additional information | Dawn McCoy Dana Stevens eoscentralva@gmail.com |
| Washington (state) | EMPOWER: EOS Moms and Pops Organizing Washington EGID Resources | When: Monthly meetings Where: locations vary. Please e-mail for additional information and directions | Angie Vos, Co-leader angievos48@gmail.com +1 (360) 970-8257 Catriona Colerick, Co-leader mommacatriona@facebook.com +1 (360) 828-2600 Jessica Young, Leader empowerwashington@yahoo.com |
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