Eos Support Webinar Series

APFED’s Eos Support Webinar Series offers a virtual forum for patients and families to connect and learn.

 

Upcoming Webinars

Stay tuned as we continue to add to our lineup of speakers and topics throughout the year.

 

Hypervigilance and Anxiety in EoE Patients

Hypervigilance and Anxiety in EoE PatientsOctober 5 at 1:30 PM ET

Psychologist Tiffany Taft will join us to discuss findings from her research that looked at measuring symptom anxiety and hypervigilance in those who have EoE. She will also discuss her efforts to research treatments to target these issues to help those with esophageal diseases better cope with chronic symptoms. During this webinar, you will learn how symptom anxiety and hypervigilance was measured, and some steps you can take if you or a loved one are experiencing these feelings.

Register for webinar

 

Featured speaker

Tiffany Taft, PsyD
Clinical Psychologist and Associate Professor
Northwestern University’s Feinberg School of Medicine

Dr. Taft is a clinical psychologist and Associate Professor at Northwestern University Feinberg School of Medicine where she researches the social and emotional impacts of chronic digestive diseases. She has specific interest in the impacts of EGIDs and other esophageal conditions, as well as developing brief, accessible treatments for those patients who need help coping with their illness. Dr. Taft created the now official measure of health-related quality of life for adults with EoE, and published the first studies on disease stigma in EGIDs. She currently focuses on the role of the brain-gut connection in esophageal diseases with the goals to improve symptoms and quality of life in patients with these conditions.

 


 

Past Webinars

 

Webinar: Shared Decision Making in HealthcareShared Decision Making in Health Care

September 2021

Guest presenter Joy Chang, MD, MS, discussed shared decision making in healthcare. She taught us the benefits of taking an active role in healthcare and working with providers to arrive at the best course for treatments. Watch this webinar to learn how to broach the subject of shared decision making with your doctor, as well as common areas of healthcare that lend themselves to shared decision making.

>> Watch webinar recording on YouTube

>> View slides

 

Featured speaker

Joy Chang, MD, MS
Gastroenterologist
University of Michigan Health

Dr. Chang is an adult gastroenterologist at the University of Michigan whose clinical and research interests include improving the care, quality of life, and patient-provider communications for patients with eosinophilic esophagitis (EoE). During her training as a GI and advanced esophageal fellow, she developed an interest in how patients’ various preferences and values play into decisions about initiating and maintaining EoE treatment. Dr. Chang’s research focuses on shared decision making, health technology interventions in EoE care, and patient-centered collaborative research methods.

 

Resources shared during the webinar

 


 

Taking the Lead in Your Own HealthcareTaking the Lead in Your Healthcare: Tips for Teens & Young Adults

August 2021

Patient advocate, Ryan Piansky presented an informative, hour-long, webinar for teens and young adults about managing their own healthcare.

Ryan shared his own journey and personal life experiences as well as answered questions at the end of the webinar.

>> Watch webinar recording on YouTube

>> View slides

 

Featured speaker

Ryan Piansky
Advocate

Ryan Piansky is a 21-year-old college student at the Georgia Institute of Technology. He has eosinophilic esophagitis as well as eosinophilic asthma and follows a restricted diet. Despite health issues, he leads an active life including travel, such as a semester abroad, and patient advocacy efforts. A long-time volunteer of APFED and supporter of the organization’s mission, Ryan has educated lawmakers on Capitol Hill about eosinophil-associated diseases and the unmet needs of the patients, has shaped educational programming, participates in research initiatives, and elevates awareness of these conditions.

 

Resources shared during the webinar

 


 

Traveling with Dietary Restrictions WebinarTraveling with Dietary Restrictions, Tube Feedings, and Parenteral Nutrition

August 2021

Informative webinar presented by APFED’s President, Wendy Book, MD, focused on practical strategies for traveling with dietary restrictions.

Dr. Book discussed the challenges of traveling with dietary restrictions, tube feedings, and parenteral nutrition. She shared common challenges and practical strategies she has personally employed over the years, as well solutions shared by others in our community. Watch the recording to gain new knowledge from someone who has “been there”!

>> Watch webinar recording on YouTube

>> View slides

Featured speaker

Wendy Book, MD
President, American Partnership for Eosinophilic Disorders

Dr. Book has been involved in a volunteer capacity on the executive board of APFED, serving as the board’s President since 2009. She has led education, advocacy, research, and awareness efforts leading to the creation of National Eosinophil Awareness Week, NIH report language, the NIH Task Force on the Research Needs of Eosinophil-Associated Diseases (TREAD) document, insurance coverage of medical foods, and development of ICD-9-CM codes for eosinophilic gastrointestinal diseases. She assisted in development of APFED’s HOPE on the Horizon Research Grant Program which provides funding to investigators. Her efforts have led to collaborations with other patient advocacy groups, physicians, medical societies, and federal agencies. Her experience as a parent of a chronically ill child, and as a physician, provides a unique perspective on the patient experience and challenges involved with managing eosinophil-associated disease.

Resources shared during the webinar

 


Thank you to our Education Partners for their support of this series:

 

AstraZeneca

 

Bristol Myers Squibb

 

Takeda