Community Partner Events & Fundraisers

Rare Disease Day

The rare disease patient community will come together in unity to celebrate Rare Disease Day on February 29, 2024 (leap year, which is the rarest day of all)! This special day is focused on raising awareness among the general public and decision-makers about rare diseases and their impact on peoples’ lives.

Visit the U.S. Rare Disease Day website to learn how to get involved and download resources.   Global activities are also available.

Also join these #RareDiseaseDay events:

Rare Disease Day at NIH 2024 on February 29 (Virtual and in person in Bethesda, MD)

Rare Disease Day at FDA 2024 on March 1 (Virtual public meeting)

 

Eos Support Webinar Series

The Eos Support Webinar Series offers a year-long virtual forum to learn and ask questions. Registration is free. Access to past webinars is available.

Learn more