Support Groups

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Online Support Community

APFED’s  online support community, “EOS Connections“, gives patients, caregivers, and family members, whose daily lives are affected by an eosinophil associated disorder, a chance connect with inspireothers for support and to share information. EOS Connections is monitored by Inspire and APFED.

Locate Others on Facebook

This map, hosted on Facebook, allows patients and their families to connect, by state and country. lf you choose to add yourself and are on Facebook, click on the box next to your state. In order to view others in your state, click on the number or dots to the right of where your state is listed. Before listing yourself on Facebook, you may want to consider security of the information you make public.

 

Local Support

APFED does not have affiliated support groups, but as a courtesy, we provide a list of local eosinophilic support groups that are volunteer-led. Groups provide emotional and educational support and information about local programs, services, social and/or fundraising events for families and individuals with eosinophil-associated diseases. Please verify meeting information, location and times with the group leader prior to attending each meeting because all information is subject to change.

If you do not see your city listed and would like information on how to start  your own support group, please e-mail mail@apfed.org for assistance. If you are a support group leader and would like to be listed, please e-mail mail@apfed.org.

This list does not imply endorsement or affiliation of any support group with APFED.

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A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

 

State/City Support Group Meeting Schedule &
Location
Contact
Alabama Alabama Eosinophilic Disorders Support Group Where: Birmingham, AL Victoria DeLano
eosalabama@gmail.com
Alaska Alaska EGID Due to the geographical diversity of Alaska, we try to
meet a couple times of year mid state, around Anchorage or Wasilla area. Most group contact is through Facebook.
Gail Balzer
gailbalzer@rocketmail.com
(907) 394-3883
Facebook:
https://www.facebook.com/groups/225767514200389/
Arizona, Phoenix Arizona EOS Support Group When: Last Thursday, every other month
Where: Banner Desert Medical Center
Please e-mail or call for additional directions and information
Tara Ross
az.eos@hotmail.com
Arkansas Arkansas Eosinophilic Support Group Please e-mail or call for more information Chance Smith
chancery.smith@att.net
(501) 364-4000
Facebook:
https://www.facebook.com/groups/495713544108786/
California, San Francisco NorCAL EOS Support Group Please e-mail for information about meetings and for directions. Sara Landucci
stlanducci@yahoo.com
California, San Diego San Diego/Temecula EGID Support Group When: Quarterly meetings Where: Childrens Hospital San DiegoPlease e-mail or call for additional directions and information Kim Gerber
kgerber4@yahoo.com
951 757-5718
Colorado, Denver EOS Colorado When: Please e-mail or call for additional directions and information Chanda Organ
denver.eos@gmail.com
Facebook link:
https://www.facebook.com/pages/Denver-EOS/225804177452051
Connecticut CT Medically Necessary Diets, THRIVE When:Please e-mail or call for additional directions and information Stephanie Billiel
Sbilliel@comcast.net
Delaware Tri-state Philly area support group for adults and teens will have their first meeting November 14, 2013 Presbyterian Hospital, Philadelphia. E-mail or call for more information about meeting dates. Most interaction is through a Facebook Group. Deb Bruner deborahsbruner@comcast.net 610-213-8682
Georgia, Atlanta Atlanta/N. Georgia Eosinophilic Disorders Support Group When: Quarterly meetings. Please e-mail or call for additional information Dani Startt
danistartt@yahoo.com
678-520-3703
Georgia, Augusta Central Savannah River Area When: Bi-monthly meetings Where: Medical College of Georgia. Please e-mail or call for additional information Melinda Garrett
m_garrett@mac.com
480-323-9527
Indiana, Indianapolis A coordinator is needed to form a support group in Indianapolis. Interested parties are asked to contact Dr. Sandeep Gupta at 317-944-3774 or sgupta@iupui.edu
Louisiana and Gulf Coast Mississippi Eosinophilic Disorder Support Group Meetings are in Northshore of New Orleans, LA. Please e-mail or call for additional information. Susan Munro
985-956-2539
EOSLouisiana@yahoo.com
Facebook: https://www.facebook.com/groups/360206000725892/
Massachusetts, Boston EGID Support Group of Boston The 1st Monday of every month, 7-9pm, at Children’s Hospital in Lexington. See www.EGIDBoston.org for details and directions. Dianna Queheillalt dianna@EGIDBoston.org 617-529-5066
Facebook Link: http://www.facebook.com/groups/EGIDBoston/?fref=ts
Montana Montana Eosinophilic Support Group Please call or e-mail for additional information and directions Becky Sullivan beckysullivan406@gmail.com
Facebook: https://www.facebook.com/groups/275673282557738/
Nevada, Las Vegas EOS Las Vegas Please e-mail for for more information Amber Hoyt
agtamber@hotmail.com
Facebook: https://www.facebook.com/#!/groups/388399011231737/?fref=ts
New Jersey area Tri-state Philly area support group for adults and teens will have their first meeting November 14, 2013 Presbyterian Hospital, Philadelphia. E-mail or call for more information about meeting dates. Most interaction is through a Facebook Group. Deb Bruner deborahsbruner@comcast.net 610-213-8682
New York, Buffalo Western New York Support When: Bi-monthly meetings Where: Locations vary. Please call or e-mail for additional information and directions Erica Beyea
debeyea@verizon.net
716-992-3745
New York, New York City New York Metro EOS Support Group When: Bi-monthly meetings Where: Mount Sinai Hospital. Please call or e-mail for additional information and directions Amy Jo Frischling
NewYorkMetroEosSupport@gmail.com
New York, Rochester Rochester Eosinophilic Support Group When: Bi-monthly meetings Where: Chili Public Library, Chili, NY. Please call or write for additional information and directions Christine Howlett
Rochestereosinophil@yahoo.com
585-395-1912
North Carolina, Charlotte Charlotte Supports EOS Raquel Durban
RDURBAN@ASTHMANC.COM
704-341-9600 ext 1302
Facebook:
http://www.facebook.com/groups/charlottesupportseos/
North Carolina, Raleigh Triangle Eosinophilic Group (TAG) When: Every 3rd Sunday from 3 to 5pm Locations: vary. Please call or e-mail for additional information and directions Claire Constantikes, Co-leader
constantikes@yahoo.com Susan Ramquist, Co-leader
sramquist@nc.rr.com
Ohio, Akron/Cleveland Akron/Cleveland area Eosinophilic support group Please e-mail for additional information and directions Stacy Bergdorf
steg1994@yahoo.com
330-687-3603
Ohio, Cleveland Cleveland EOS Group When: Third Saturday every month. Location and time varies.
Please e-mail for additional information and directions
Jeannette Gordon
nettiegor@aol.com or 440-289-3679
Ohio, Cincinnati Cincinnati Center for Eosinophilic Disorders/Cincinnati Eosinophilic Family Coalition When: every other month from 6:30pm-8pm at the hospital; refer to website for details regarding specific room information; childcare is provided free of charge website: www.eoscoalition.org
email: contact@eoscoalition.org
phone: 513-600-8900
Philadelphia Tri-state Philly area support group for adults and teens will have their first meeting November 14, 2013 Presbyterian Hospital, Philadelphia. E-mail or call for more information about meeting dates. Most interaction is through a Facebook Group. Deb Bruner deborahsbruner@comcast.net 610-213-8682
South Carolina Charleston EOS Support Group This group schedules activities through its Facebook page. Stephanie Sams 843-813-6735
email: stephsams@comcast.net
South Carolina Greenville Spartanburg Eos Support Group This group schedules activities through its Facebook page. Victoria DeLano
eosalabama@gmail.com
Tennessee, Chattanooga C.A.R.E: Chattanooga Area Resources for EOE This group schedules activities through its facebook page Rachel Brookshire email- redbugmom2@gmail.com
Texas, Austin Austin Families with Food Allergies When: First Sunday of the month at 7pm (rotating locations).
A subgroup for EGIDs meets every 3rd Sunday of the month for Mom’s night out. Where: La Madeline (N183 ) Whole Foods – William Cannon
9828 Great Hills Trail & 4301 W William Cannon Dr
Deborah Turner-Mack
deborahraeturner@gmail.com
Website: https://www.bigtent.com/groups/affa
Facebook page: https://www.facebook.com/Austinfamilieswithfoodallergies/?fref=ts
Texas, Dallas Ft. Worth Eosinophilic Family Coalition DFW Chapter Monthly meetings. Please e-mail for additional information and directions https://www.facebook.com/DFWeos/

http://eoscoalition.org/

Amy Zicarelli, Leader

amy@whitelinepartners.com

214-289-3022

Utah, Murray UFAN Division of Eosinophilic Support (DOES) When: Quarterly meetings
Where: Doty Education Center , Intermountain Hospital
Please e-mail for additional information and directions
Tammy Zundel
does@utahfoodallergy.org
Virginia (Richmond, Fredericksburg, Tidewater, Charlottesville) Central Virginia EOS Support Group Please e-mail for additional information Facebook link:
https://www.facebook.com/groups/CentralVA.EOS.SupportGroupDawn McCoy
Dana Stevens
eoscentralva@gmail.com
Washington DC, Maryland, Virginia Washington DC Area Eosinophilic Connection (WAEC) When: 2:30-4:30pm on 1st Sunday of month in Jan, Mar, May, Aug, Oct, Dec w/ family event planned during summer (Jun/Jul)
Where: conference room of George Mason Regional Library at 7001 Little River Turnpike, Annandale, VA
Please e-mail for additional information and directions
Vicki Boughton
Rosemary Moriarty
waec-owner@yahoogroups.com
washingtoneos.org
Washington (state) EMPOWER: EOS Moms and Pops Organizing Washington EGID Resources When: Monthly meetings
Where: locations vary. Please e-mail for additional information and directions
Facebook link:
https://www.facebook.com/groups/EmpowerWA/
Angie Vos, Co-leader
angievos48@gmail.com
(360) 970-8257
Catriona Colerick, Co-leader
mommacatriona@facebook.com
(360) 878-2600
Jessica Young, Leader
empowerwashington@yahoo.com