APFED welcomes inquires from the Media. We can provide you with accurate, up-to-date information about eosinophil associated disorders and assist you in contacting medical experts in the field and families living with these diseases.
Eosinophil Associated Disorders Fact Sheet
|Wendy Book||APFED Presidentfirstname.lastname@example.org|
|Mary Jo Strobel||Executive Directoremail@example.com|
Quick Facts about Eosinophilic Disorders
A group of uncommon diseases, eosinophil associated diseases, are rapidly emerging as a healthcare problem worldwide. Yet many patients suffering from these disorders go undiagnosed for years due to the lack of information or awareness of these disorders.
- These disorders are characterized by having above normal amounts of eosinophils, a type of white blood cell, in one or more specific places in the digestive system, tissues, organs, and/or blood stream, which causes inflammation and damage.
- Diagnosis can only be made through biopsies of affected areas.
- These diseases are chronic and often debilitating.
- Delays in diagnosis are common and often patients are misdiagnosed.
- Many subsets of eosinophil-associated disease currently do not have an approved therapy.
Facts about APFED – The American Partnership for Eosinophilic Disorders
The American Partnership for Eosinophilic Disorders (APFED) is a 501c3 nonprofit organization founded in December 2001 by a group of mothers of young children living with eosinophil-associated diseases. We are a patient advocacy group dedicated to improving the lives of those living with eosinophilic disorders.
To passionately embrace, support, and improve the lives of patients and families affected by eosinophil-associated diseases through education and awareness, research, support, and advocacy.
APFED implements a multifaceted approach focusing on:
– Education and Awareness
With education and awareness, accuracy of diagnosis improves, suffering decreases, a supportive community develops, and research funding grows.
- APFED’s website and educational materials are developed to be easy-to-read, up-to-date, accurate and user-friendly.
- APFED’s Medical Advisory Board reviews all of the medical information APFED publishes for its content and accuracy. Because of this high standard, the organization has been featured, quoted, cited and referenced in medical journals and teaching manuals for medical students and professionals, television news stories, newspaper articles and magazines covering the subject of eosinophilic gastrointestinal disorders.
- APFED offers multiple platforms for community engagement and connection, including its website, www.apfed.org, social media channels, online community on the Inspire Network, and e-newsletters.
- All funds raised for APFED support the organization’s mission to expand education, create awareness, and fund research of eosinophil associated diseases. Donations may be earmarked to support any of our campaigns, including research.
APFED is a 501(c)3 organization dedicated to patients and their families coping with eosinophilic disorders. APFED strives to expand education, create awareness, and fund research while promoting advocacy among its members.
Tax ID: 76-0700153