APFED welcomes inquires from the Media. We can provide you with accurate, up-to-date information about eosinophil associated disorders and assist you in contacting medical experts in the field and families living with these diseases.
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Quick Facts about Eosinophilic Disorders
A group of uncommon diseases, eosinophil associated diseases, are rapidly emerging as a healthcare problem worldwide. Yet many patients suffering from these disorders go undiagnosed for years due to the lack of information or awareness of these disorders.
- These disorders are characterized by having above normal amounts of eosinophils, a type of white blood cell, in one or more specific places in the digestive system, tissues, organs, and/or blood stream, which causes inflammation and damage.
- Diagnosis can only be made through biopsies of affected areas.
- These diseases are chronic and often debilitating.
- Delays in diagnosis are common and often patients are misdiagnosed.
- There is not an approved treatment for most eosinophil associated disorders and there is NO CURE.
Facts about APFED – The American Partnership for Eosinophilic Disorders
APFED is a non-profit organization dedicated to patients and their families coping with eosinophilic disorders. APFED strives to expand education, create awareness, and support research while promoting advocacy among its members.
APFED assists and supports patients and families affected by eosinophilic disorders, including eosinophilic esophagitis, eosinophil-associated gastrointestinal disorders, hypereosinophilic syndrome, and Churg-Strauss Syndrome.
- APFED is currently the largest patient advocacy organization dedicated specifically to eosinophil associated disorders.
- The growth of the organization has increased at a rapid rate in the last 10 years, due to the increasing diagnosis of these diseases in both children and adults.
- Our web site, educational materials, books and promotional items are all developed to be easy-to-read, up-to-date, accurate and user-friendly.
- APFED’s Medical Advisory Board reviews all of the medical information APFED publishes for its content and accuracy. Because of this high standard, the organization has been featured, quoted, cited and referenced in medical journals and teaching manuals for medical students and professionals, television news stories, newspaper articles and magazines covering the subject of eosinophilic gastrointestinal disorders.
- APFED’s website, www.apfed.org, averages 15,990 visits with 12,800 unique visitors each month, and generates over 48,300 page views monthly from over 60 countries.
- All funds raised for APFED support the organization’s mission to expand education, create awareness, and fund research of eosinophil associated disorders.
APFED is a 501(c)3 organization dedicated to patients and their families coping with eosinophilic disorders. APFED strives to expand education, create awareness, and fund research while promoting advocacy among its members.
Tax ID: 76-0700153