Initial Visit
After a diagnosis of an eosinophil-associated disease is made, you will likely have many questions, and may even be wondering what questions you should be asking. Here are some suggestions to note for your doctor’s visit.
- Where in my body specifically were eosinophils found, and how many were seen? (e.g., esophagus, stomach, intestines?)
- What is triggering the eosinophilic response? Do I have an underlying disorder/disease? Am I more likely to develop another disease as a result of my condition?
- Will I undergo allergy testing? What type of tests will be performed? What allergens will be tested?
- What is my treatment plan? Will I be prescribed medications and will you demonstrate correct storage and usage?
- Will I need to modify my diet? If so:
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- Could you provide a list of appropriate substitutions for foods that are taken out of the diet?
- Will I need to take vitamin supplements, and if so, what type?
- Will I need supplemental formula?
- Will I need to work with a dietitian or a nutritionist?
- How can I determine that I’m getting adequate nutrition?
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- How will we determine if treatment is effective?
- How often will I need follow-up care? What tests or procedures will be part of the follow-up?
Additional Resources
Special thanks to Kimberlee Walsh, PA-C, a board certified physician assistant and the mother of a son who has EoE, for her assistance in preparing this content.