Support Groups

APFED Connect offers a supportive virtual platform for those living with eosinophilic disorders to meet in small groups to give and receive peer support.

See below for a list of upcoming virtual meetings. Register to join us for moderated discussions on managing the physical and emotional aspects of eosinophilic disorders. We’ll add to this list as additional meetings are planned.

APFED Connect for Children and Teens aged 10-14

April 12, 2025           3:00 pm EST

Led by Cam, a teen living with EoE.

Registration is required. The group is limited to 12 people and is open on a first-come, first-serve basis.

APFED Connect Group Guidelines 

Respect & Privacy

• Do not share other people’s information outside of the group
• Listen when others are speaking
• Refrain from negative comments
• Be supportive of new members
• No screenshots or recordings during meetings

Communication

• It’s okay to pass if you don’t want to share
• One person talks at a time, no interrupting others

Safe Space

• This is a judgment-free zone, everyone’s feelings are valid.
• It’s okay to have different experiences with your eosinophilic disease
• It’s okay to feel upset, frustrated, or angry about having an eosinophilic disease
• It’s also okay to feel positive or share successes
• Do not contact anyone outside of the group unless you have prior permission

The APFED Connect Program is made possible thanks to a grant from Sanofi/Regeneron.

Additional Online Support Communities

APFED’s online support community, “EOS Connections“, gives patients, caregivers, and family members, whose daily lives are affected by an eosinophil associated disorder, a chance connect with others for support and to share information. EOS Connections is monitored by Inspire and APFED.

There are also a number of Facebook groups for people with eosinophilic disorders. You may use the platform’s search function to find groups to engage with.

Local Support

APFED does not have affiliated support groups, but as a courtesy, a list of volunteer-led support groups are below. Please verify meeting information, location and times with the group leader prior to attending each meeting because all information is subject to change. This list does not imply endorsement or affiliation of any support group with APFED. This list is intended only for groups that organize meetings and events for members to participate in.