All posts by Mary Jo Strobel

Help Us Reach Our Goal!

Join APFED in celebrating its 15th anniversary by participating in our $150,000 HOPE challenge!

APFED supports our research community through our HOPE on the Horizon Research Program. The program is supported entirely by donations. Our contributions to vital research efforts are only limited by the funds we receive!

Will you help us reach our goal of raising $150,000 this year?

All individual donations, matching gifts, and proceeds from fundraising events for APFED in 2017 will count toward our goal!

Are you ready to get started?

o    Make a tax-deductible gift to APFED this year!
•    When you donate, consider setting up a recurring gift (you may choose the frequency), and/or make your contribution in honor of a loved one.
•    Maximize your gift through your employer’s matching gifts program, if offered.

o    Encourage friends and family to donate to APFED’s $150,000 HOPE Challenge!
•    Share this webpage on social media, and let your friends know that you are participating and ask them to make a donation and share, too. Consider using the Razoo fundraisng platform to create a personalized page and gain access to their robust share tools.

o    Turn your passion into action! Do you play a sport? Love to scrapbook? Enjoy card games? Turn your passion into action by coordinating a fundraising event to benefit APFED.  Partner with local businesses to designate a portion of proceeds to APFED, or organize a fundraising dinner, a local Walk/fun run, or a sports tournament. You can even your employer or your child’s school involved! It’s easy to get involved in ways both big and small! APFED will help you every step of the way. Contact Julie Forrest at jforrest@apfed.org for more information.

o    Consider other ways to contribute. Did you know APFED receives a percentage when people use designated shopping/search links, or make purchases from partner businesses? Learn more!

As of November 5, 2017, our goal is within reach!

Thank you for your involvement and for your continued passion to help families living with eosinophil-associated diseases. Together, we’ll move research forward, unlocking answers about these diseases as we continue our quest for a cure!

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Mike DelGuidice and Big Shot Headline Benefit Concert on November 10 for APFED

Billy Joel tribute band will perform in New York City to fund research for eosinophilic esophagitis (EoE)

(Atlanta, GA)— The second annual “Charit-EoE Concert for a Cure for Eosino…what???” is set for the Intercontinental New York Barclay in New York City on Friday, November 10, with doors opening at 7:30 PM.  Lance and Arlene Steinberg will host this evening of music and fundraising to benefit APFED’s HOPE on the Horizon Research Fund.

The benefit concert will feature an exclusive performance by the legendary Mike DelGuidice and Big Shot, celebrating the music of Billy Joel.  The evening will also include a return performance by FRANK!, the Fairfield Connecticut School of Rock Band. In addition, Lonnie Quinn of CBS 2 News will be making a special appearance.

General admission tickets can be purchased now at apfed.org/events/concert-for-a-cure/ for a cost of $150 per person. The event is expected to sell out. The ticket price includes three hours of cocktails, light fare, a gift bag filled with a variety of items from generous sponsors, and an incredible night of awareness, music, community, and fun.

Proceeds from the concert will benefit APFED’s HOPE on the Horizon Research Fund, which awards grants to investigators who initiate new projects relevant to eosinophilic esophagitis (EoE) and other eosinophil-associated diseases.

“We are delighted to be doing this event for the second year. Last year’s benefit concert was such an amazing, life-changing event for all involved,” said Lance and Arlene Steinberg. “We are grateful for the opportunity to bring such a special night of music to this community and to support APFED and its groundbreaking research program.”

“This is a night to honor, celebrate, and support patients and families,” added APFED Executive Director Mary Jo Strobel. “We truly value our partnership with the Steinberg family and their commitment to advancing research. This event has not only the gifts of music and community, but also creates hope through the new projects that it makes possible.“

APFED is grateful for the support of the following Double Platinum Sponsors: The Chan Family, InterContinental Hotel Group, and Flintlock Construction Services, LLC. We also thank the following Platinum Sponsors:  Adare Pharmaceuticals, Inc; Barbara & Jerry Burstein; Furniture Design Knossos, Inc; The Steinberg Family; and Stonehill & Taylor Architects, PC.

About Eosinophilic Esophagitis (EoE)

Eosinophilic esophagitis (EoE) is a chronic, allergic inflammatory disease of the esophagus (the tube connecting the mouth to the stomach). It occurs when a type of white blood cell, the eosinophil, accumulates in the esophagus and persists despite acid-blocking medicine. The elevated number of eosinophils cause injury and inflammation to the esophagus. This damage may make eating difficult or uncomfortable, potentially resulting in poor growth, chronic pain, and/or difficulty swallowing.

EoE is a subset of a group of rare, chronic conditions known as eosinophil-associated diseases. When a person has elevated numbers of eosinophils in their digestive system, tissues, organs, and/or bloodstream, without a known cause, he or she may have an eosinophil-associated disease. Due to the lack of information or awareness of these diseases, patients may suffer for years trying to obtain an accurate diagnosis and appropriate treatment.  Although not commonly life-threatening, these chronic diseases require lifelong treatment and can cause debilitating symptoms. There is no cure and no FDA-approved treatments.

About American Partnership for Eosinophilic Disorders (APFED)

American Partnership for Eosinophilic Disorders (APFED) is a non-profit organization dedicated to patients and their families coping with eosinophilic disorders. APFED’s mission is to passionately embrace, support, and improve the lives of patients and families affected by eosinophil-associated diseases through education and awareness, research, support, and advocacy. www.apfed.org

 

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Concert for a Cure

Featuring Mike Delguidice and Big Shot, Celebrating the Music of Billy Joel

Friday, Nov. 10

InterContinental New York Barclay

New York, NY

To purchase tickets or make a donation, visit https://concertforacure2017.eventbrite.com.

For up to date information, follow us on Facebook.


Seeking Corporate Event Sponsors in the New York City Area

Contact Julie Forrest at jforrest@apfed.org for details!

 
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PROCEEDS TO BENEFIT THE AMERICAN PARTNERSHIP FOR EOSINOPHILIC DISORDER’S HOPE ON THE HORIZON RESEARCH PROGRAM