All posts by Mary Jo Strobel
Elimination Diet Research Study for Children
Has your child recently been diagnosed with EoE? Learn more about a new study looking at dietary therapy in children to see if your child is eligible to participate.
- Hear from patient advocates about the impact of this study in this video.
- Learn more about the benefits of participating in this study: Benefits Flyer
- Learn more about this study with a shareable flyer: Study Flyer
Multi-Site Clinical Studies are Enrolling
Longitudinal Study
OMEGA: A Prospective, Multicenter Study to Compare and Validate Endoscopic, Histologic, Molecular, and Patient-Reported Outcomes in Pediatric and Adult Patients with Eosinophilic Esophagitis (EoE), Gastritis (EG) and Colitis (EC)
Ages 3-65
- Review, download, and share CEGIR OMEGA Study Information (PDF)
- Visit the CEGIR website to learn more about the OMEGA Study and enrolling sites
Diet Study: Adults
SOFEED: Six Food vs One Food Eosinophilic Esophagitis Elimination Diet followed by Swallowed Glucocorticoid Trial
Ages 18-60
What is the most effective diet to treat EoE in adults? Could a less restrictive diet be as effective? The SOFEED clinical trial seeks to find answers to this question and more. Do you qualify to participate?
- Visit the CEGIR website to learn more about the SOFEED Study
Diet Study: Pediatrics
Ages 6-17
Eosinophilic Esophagitis (EoE) Intervention Trial-Randomized 1 Food Elimination vs. 4 Food Elimination Diet followed by Swallowed Glucocorticoids
What is the most effective diet to treat EoE in children? Could a less restrictive diet be as effective? A new clinical trial open to children ages 6-17 seeks to find these answers. Learn more at rarediseasesnetwork.org/cms/pcori/.
- Learn more about this study with a shareable flyer: Study Flyer
- Hear from patient advocates about the impact of this study in this video.
Give the Gift of HOPE
Please think of APFED as you plan your end-of-year charitable contributions. Our programs and services exist only because you have supported them and have encouraged others to do the same:
• Hope on the Horizon Research Fund
• School advocacy how-to, templates, and support
• Advocacy for state and federal mandates on insurance coverage of medical foods
• Website resources and online community
• Resources for health care providers
• Information for support group leaders
• Phone and e-mail support
If APFED has helped you and your family, or has helped your patients, please consider a tax-deductible gift so that we may continue our important work. Every dollar matters as we progress toward a cure.
Thanks in advance for your contribution and for helping APFED to be there tomorrow for the patients and families who need us! Learn more about the impact of your contribution in APFED’s 2016 Champions for Change Progress Report.
APFED to Kick Off 14th Annual Eos Connection Conference in San Diego for Those Living with Eosinophilic Gastrointestinal Disorders (July 8-9, 2016)
(Atlanta, GA)—The American Partnership for Eosinophilic Disorders (APFED) is pleased to announce that its 14th Annual Patient Education Conference on Eosinophilic Gastrointestinal Disorders (EGIDs) will be held this week in San Diego, CA on July 8-9. APFED hosts this patient-focused conference as a chance for patients, families, caregivers, community advocates, and leading experts from across the United States to come together in one place for education, networking, insight, and inspiration.
Held at the Sheraton San Diego Hotel & Marina, the conference will feature roughly 25 educational and experiential sessions geared toward the Eos community, from recently-diagnosed patients to veterans of EGID management, as well as programs for children and teens.
Eos Connection attendees will learn the latest advancements in the diagnosis and treatment of EGIDS, as well as promising research on the horizon. In addition, attendees will get practical tools to implement in the daily management of EGIDs, as well as strategies to help cope with the physical and emotional challenges of living with EGIDs. The conference is also a time for individuals and families to meet and build a support network with others who are managing these diseases. Social activities will include Family Fun Day at the USS Midway® Museum on July 7 and APFED’s HOPE on the Horizon Walk on July 8 to raise funds for EGIDs research.
Eosinophilic-associated diseases (EADs) are chronic inflammatory disorders characterized by having above normal amounts of eosinophils, a type of white blood cell, in one or more specific places in the digestive system, tissues, organs, and/or blood stream, which causes inflammation and damage. The most common of these diseases are EGIDS, which affect the gastrointestinal tract and often render the patient unable to tolerate certain food proteins.
“This year’s conference offers a robust program designed to help patients and families effectively manage EGIDs at any stage of their journey,” said APFED Executive Director Mary Jo Strobel. “We are grateful to welcome a remarkable group of speakers who are lending their time, knowledge and guidance at the conference to help benefit our patient community. Their insight, coupled with the sense of hope and community that the conference creates, empowers those affected by EGIDs to take on the challenges presented by these diseases.”
For those who cannot attend the conference onsite in San Diego, APFED is excited to offer a virtual registration option. On Saturday, July 9, virtual attendees may participate online via webcast in the conference’s general session and submit questions for conference speakers. This option also allows support groups and clinics to host their own “viewing parties” for the cost of a single registration fee.
Eos Connection 2016 is made possible thanks to the generous support of APFED’s Education Partners, including Presenting Partner EleCare®.
Learn more about the conference and ways to register at apfed.org.
About American Partnership for Eosinophilic Disorders (APFED)
American Partnership for Eosinophilic Disorders (APFED) is a non-profit organization dedicated to patients and their families coping with eosinophilic disorders. APFED’s mission is to passionately embrace, support, and improve the lives of patients and families affected by eosinophil-associated diseases through education and awareness, research, support, and advocacy. www.apfed.org
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