The rare disease patient community will come together in unity to celebrate Rare Disease Day on February 29, 2020 (leap year, which is the rarest day of all)! This special day is focused on raising awareness among the general public and decision-makers about rare diseases and their impact on peoples’ lives.
- Visit the U.S. Rare Disease Day website to learn how to get involved and download resources at us. For global activities, visit rarediseaseday.org.
- “Show Your Stripes” with APFED’s Rare Disease Day Facebook Frame in honor of this year’s event theme and to raise awareness of eosinophil-associated disease!
- Participate in a special Rare Disease Day event at the National Institutes of Health in Bethesda, Maryland on February 28, 2020, from 8:30 a.m. to 4:30 p.m. This free event will feature speakers and panelists discussing topics such as personalized medicine, shortening the journey to diagnosis, and NIH clinical trial resources, and much more. Get complete details and to register to attend onsite or participate via webcast. APFED is excited and honored to have been a part of the planning committee for this special event!