Everyone whose life has been touched by an eosinophil associated disease has a story to share. Here, we feature perspectives from patients and family members who live with these chronic diseases each day. These are just a few of the “Faces of Eos”. We look forward to sharing additional stories in the near future! Lynn … Continue reading Patient Stories
Everyone whose life has been touched by an eosinophil associated disease has a story to share. Here, we feature perspectives from patients and family members who live with these chronic diseases each day. These are just a few of the “Faces of Eos”. We look forward to sharing additional stories in the near future! Lynn … Continue reading Patient Stories
Bonnie Weinbach and her son Aaron traveled from their home in Larchmont last week to the nation’s capital to meet with legislators including Rep. Nita Lowey (D-NY), and the staff of Sen. Chuck Schumer (D-NY), Sen. Kirsten Gillibrand, and Rep. Eliot Engel (D-NY). Aaron Weinbach, 8, suffered for several years before being diagnosed with eosinophilic … Continue reading Larchmont Family Visits DC to Discuss Rare Disease with Legislators
Larchmont resident Bonnie Weinbach and her son Aaron traveled to Washington D.C. last week to meet with legislators, including Rep. Nita Lowey (D-NY); and the staff of Sen. Chuck Schumer (D-NY), Sen. Kirsten Gillibrand, and Rep. Eliot Engel (D-NY). Weinbach united with other families living with eosinophil associated diseases for Capitol Hill Day during National … Continue reading Larchmont family travels to D.C. to discuss rare disease with legislators
The Koscinski family from South Carolina was recently invited to be guests on the Anderson Cooper Daytime Talk Show, to discuss the illness their son, Joshua, lives with – Eosinophilic Esophagitis. In a segment titled “The Boy Who Cannot Eat” Cara and Brent Koscinski shared with Anderson and the audience what life is like for … Continue reading The Boy Who Cannot Eat
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